Story: Health advocacy and self-help

Drug funding

Drug funding

In the 2000s the Prader-Willi Syndrome Association of New Zealand argued that all children diagnosed with this genetic disorder should receive fully funded growth-hormone treatment. In 2006 Tom McLellan's parents, Rachel and Shaun, were paying $18,000 a year for growth hormone injections, because Tom was 5 millimetres too tall to qualify for subsidised treatment through funding agency Pharmac.

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Otago Daily Times
Photograph by Rosie Manins

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How to cite this page:

Rosemary Du Plessis and Anne Scott, 'Health advocacy and self-help - Genetic disorder organisations', Te Ara - the Encyclopedia of New Zealand, (accessed 12 August 2022)

Story by Rosemary Du Plessis and Anne Scott, published 5 May 2011, reviewed & revised 17 Jul 2018